Tag: patient

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Announcements Current Research Seeking Participants Research

Help Shape Canada’s Bone Health Research for the Next Decade!

OsNET and the University of Waterloo are conducting a priority setting survey and looking for researchers, healthcare professionals, policy makers, other knowledge users, or persons with lived experience related to bone disease to share their voice in a two-step survey.

There are two steps in the study, both anonymous. The first step invites participants to submit what they think are important research priorities (up to five) related to bone health for Canadians in the next 10 years. Once all submissions are received, we will streamline and group them. It takes 10-15 minutes to complete the survey.

For step two, we will invite you to score submitted research priorities in groupings that are relevant to you. The criteria we will use to evaluate the research priorities relate to whether the research questions are answerable, have the potential to reduce the burden of bone disease or advance the field, and are accessible to, or are beneficial for equity-deserving groups. It takes about 10-30 minutes to complete the survey. Your submitted scores will be used to establish research priorities for bone health in Canadians over the next 10 years.

If you are interested in participating, please contact Research Assistant Hung Nguyen: hm5nguyen@uwaterloo.ca

For more information: https://osnet.ca/platforms/research-platform-2-clinical-research/osnet-priority-setting-project/?fb-edit=1

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Announcements Opportunities

AI Lay Summary Patient Partner Review Committee

We’re excited to share that the Network has been developing an AI Lay Summary Assistance Tool, designed to support knowledge translation by generating accessible lay summaries directly from the full text of peer-reviewed journal articles. The lay summary tool will soon be available for Network members to use. After creating each lay summary, we will be asking the article authors and a patient partner review committee to review the lay summaries for accuracy and accessibility.

We are in the process of creating the patient partner review committee and are seeking a few more interested patientpartners to join. The lay summaries can be reviewed asynchronously and at the discretion of the patient partner, meaning that there will not be a large time commitment involved.

If you know of any patient partners who may be interested in joining the review committee, please have them reach out to the Network Coordinator scrocke6@uwo.ca for further details.

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Announcements Opportunities Trainee Opportunities

Canadian Arthritis Summer School

Apply to attend the virtual Canadian Arthritis Summer School (CASS)

Be part of the Canadian Arthritis Summer School (CASS) from June 3-5, 2025. This unique 3-day virtual event will bring together patient partners and trainees to foster learning, collaboration, and innovation in arthritis research.

Summer school sessions will include:

  • A day in the life of a researcher, clinician, patient partner and trainee
  • How to appraise grant applications and scientific articles
  • Indigenous Engagement and being an ally in research
  • And other sessions including scientific talks, best practice in patient engagement in research, and interactive skill-building workshops

Expression of Interest:

Patient partners and trainees apply by April 28, 2025. Selected applicants will be informed by May 12, 2025.

Apply here: https://bit.ly/CASSEOI

Learn more about CASS: https://bit.ly/CanadianArthritisSummerSchool

Présentez votre demande pour participer à l’Atelier virtuel d’été canadien sur l’arthrite (AECA)

Participez à l’Atelier d’été canadien sur l’arthrite (AECA) du 3 au 5 juin 2025. Cet événement virtuel unique de trois jours réunissant des patients partenaires et des stagiaires visant à favoriser l’apprentissage, la collaboration et l’innovation dans la recherche à l’arthrite.

Voici le contenu offert durant l’Atelier d’été:

  • une journée dans la vie d’un chercheur, d’un clinicien, d’un patient partenaire et d’un stagiaire;
  • l’évaluation de demandes de subvention et d’articles scientifiques;
  • la mobilisation des Autochtones et la façon d’être un allié dans la recherche;
  • séances supplémentaires comprenant des conférences scientifiques, des discussions sur les pratiques exemplaires en matière de participation des patients à la recherche et des ateliers interactifs d’acquisition de compétences.

Déclaration d’intérêt

Les patients partenaires et les stagiaires souhaitant participer à l’atelier sont invités à présenter une déclaration d’intérêt avant le 28 avril 2025. Les personnes retenues en seront informées au plus tard le 12 mai 2025.

Obtenir plus de détails à ce sujet: https://bit.ly/CanadianArthritisSummerSchool

et poser votre candidature: https://bit.ly/CASSEOI

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Announcements Opportunities

PxP Virtual Conference 2024

Register Now for #PxP24

The 2024 PxP (For Patients, By Patients) conference, will be September 10-12 (for those in Europe, Africa or North and South America), or 11-13 (Asia and Oceania). Our purpose is to share resources, mentorship and community with patient partners and others involved in health research. Ultimately, our goal is partnering to make research stronger.

Learn more here: https://bit.ly/PxPConference-2024

Inscrivez-vous des maintenant pour #PxP24

La conférence PxP « pour les patients, par les patients » 2024 aura lieu du 10 au 12 septembre (Europe, Afrique et Amériques) ou du 11-13 (Asie et Océanie). Notre mission : offrir des ressources, du mentorat et un sentiment d’appartenance aux patients partenaires et aux autres participants à tout type de recherche en santé. Fondamentalement, nous désirons tisser des liens pour renforcer la recherche.

Lien: https://bit.ly/PxPConference-2024

PxP 2024 Regiser Now – EN[32]

PxP 2024 Regiser Now – FR[44]

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Announcements

IMHA June 2024 Newsletter

The June 2024 Institute of Musculoskeletal Health and Arthritis (IMHA) Newsletter has been released and can be accessed at this link: https://suivi.lnk01.com/v/443/216324dbc99b3bdd2019f6d72f08716b2eae5c6b25a028b2

Of particular interest to our membership may be the sections on funding opportunities and the patient partner survey.

 

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Current Research Seeking Participants

Patient Partner Survey – IMHA

The Institute of Musculoskeletal Health and Arthritis (CIHR-IMHA) and For Patients, by Patients’ (PxP) have put out a survey to inform patient engagement. They aim to learn more about resources to support writing skills among patient partners, support what patient partners would like to know about digital health, and help support patient partner led research.

If you would like to complete the survey, please access the link here: https://ubc.ca1.qualtrics.com/jfe/form/SV_bavOeyCONCLPWvA

For questions regarding the survey or about CIHR-IMHA or PxP please contact: IMHA-IALA@cihr.irsc.gc.ca

Categories
Announcements Current Research Seeking Participants Research

Helping Hand for Hand Osteoarthritis – Survey

Are you a Canadian living with Hand Osteoarthritis? St. Joseph’s Hand and Upper Limb Centre is conducting a Survey to assess people that live with Hand Osteoarthritis needs and preferences on Joint Protection Strategies, to create more personalized educational resources and improve clinical practice. If you would like to participate in the Survey, click on the Poster below for more information and access to the Survey link:

https://redcap.lawsonresearch.ca/surveys/?s=4XWEYH3H377JHAW3

If you have any questions or require more information, you can directly contact:

  • Katrina Munro, Study Research Assistant: 519-646-6100 ext 64544
  • Dimitra Pouliopoulou, Student Investigator, 519-646-6100 ext 64544
  • Dr. Joy MacDermid, Principle Investigator, 519-646-6000 ext 64636

 

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Announcements Opportunities

2024 IMHA Webinar Series

The Institutes of Musculoskeletal Health & Arthritis (IMHA) are proud to host their 2024 webinar series on patient engagement in research.

This is a patient-led initiative from IMHA’s Patient Engagement Research Ambassadors (PERA) in collaboration with the For Patients, By Patients (PxP) platform.

The second webinar will be about motivations for being a patient partner in research. The webinar will be held on May 9th, 2024 from 4pm to 5:15pm ET.

Learn more about the webinar series at: https://pxphub.org/event/webinar-series-2024/

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Announcements

Call for IMHA Patient Engagement Research Ambassador (PERA) Members

IMHA is seeking to enhance the diversity of experiences within its PERA group to build a more inclusive representation of patients and caregivers who live with, or represent conditions, related to bones, joints, muscles, connective tissue, skin and teeth.

IMHA commits to authentically engage those who have historically been excluded from participating as research partners, by ensuring equity, diversity and inclusion are of central focus in our recruitment to PERA.

IMHA is seeking members who reflect the breadth of intersectionality of the community (e.g. geography, age, race, language, sex and gender, etc.).

Call for Members: https://cihr-irsc.gc.ca/e/53091.html